Sunday, November 30, 2008

IAAC Meeting

So today I attended an IAAC meeting. Basically, it's a support group for people struggling with infertility. Rather than sit around in a circle and share, there's a guest speaker who facilitates, and some sharing is done, but it's topical. No one brings teddy bears or councils their inner child.

I wasn't sure what to expect, but I am so very very very glad I went.

The topic was the emotional impact of infertility, and specifically, coping with the holiday season. I was surprised at how much I got out of it, and how much I was able to contribute.

I met another woman with premature ovarian failure. She's about to undergo IVF with donor eggs - she wasn't able to use a known donor, so she's flying to the Czech Republic next week for her procedure with unknown donor eggs. She has had an unusually violent reaction to the Lupron, and has spent the last 10 days in bed feeling like she's dying. She's very sad because if this doesn't work, she won't be able to go through it a second time. The Lupron was that bad for her. She told me not to be afraid, though - her RE told her that he has never seen anyone react like this to Lupron. It's quite uncommon to have such violent side effects.

She had never met someone with POF, either. It was a powerful experience for both of us. It was really awesome to not be the only "super special rare unique case".

I have some amazing friends - and if you can read this, you can count yourself in with this group. You guys have been incredibly supportive and sensitive. I am aware of how lucky I am to have you. Many of the people I met today have kept their journey totally private - even from their family - because of fear of insensitivity.

And despite how wonderful you are, and how supported I am... it was incredibly powerful to be in a room full of people who get it. And I was struck quite suddenly by how very lonely this whole journey has been. I didn't realize it... until I was suddenly not as lonely.

Wednesday, November 19, 2008

Because as an infertile woman, I just don't have enough needles in my life.

So I'm going to make an appointment to try acupuncture.

There's a few reasons for this:
a) I'd like it to be part of my eventual IVF procedure, and I'd like to have tried it at least once before that, so I know what to expect
b) I am at a point now where I need help with these hot flashes. (It isn't so much "flashes" as just sudden flushing of the face and neck. I don't even think I change colour or anything, but suddenly my face and ears and even my neck are hot, like I'm really embarassed about something.)
c) I don't want to try HRT again. The last time went... badly.

Anyone heard anything terrible about this place?
http://www.calvindale.com/

Sunday, November 9, 2008

Where are we now?

Several people have inquired, so here's the answer:

We had hoped to have the IVF procedure this fall, but things have stalled due to situations beyond anyone's control. OWD has a pre-existing medical condition that is not problematic to the procedure, but she needs to visit the specialist who initially diagnosed her to get that doctor's seal of approval before we can move forward. It took our OFC doctor's office a month to reach the specialist, as her office was closed in August. The gears of the medical system's wheels move slowly, and over the past few months the specialist was finally reached, but declined to give her seal of approval without first seeing OWD. OWD moved heaven and earth to get an appointment with said specialist, and finally got one... for the end of January. No, it can't be moved up... we tried.

So that's where we are now. We'll see how things go in the spring. I figure we've waited this long, a few more months will be fine.

It has been just over a year since OWD and her partner made their very generous proposal. No matter what happens in the coming months, this year has brought us closer together and has given me hope I didn't have before. Both things are wonderful.

Tuesday, November 4, 2008

November 4, 2008

Smile though your heart is aching

Smile even though it's breaking

When there are clouds in the sky, you'll get by

If you smile through your fear and sorrow

Smile and maybe tomorrow

You'll see the sun come shining through for you

Light up your face with gladness

Hide every trace of sadness

Although a tear may be ever so near

That's the time you must keep on trying

Smile, what's the use of crying?

You'll find that life is still worthwhile

If you just smile